The Mistake I Made*

Wake up at 5.15am this morning after a good night’s sleep. Managed to get self in trouble last night: trying to take socks off, dislodged cannula in foot and there was blood everywhere. Nurse got cross with me: “can’t you ask us for help before you do something stupid?” She asked, wiping blood off the floor.

Realise that the panther has vanished. It’s about time for him to wend his way away again.

Resolve to call Dr Stein. Have a more immediate problem: phone charger has stopped working. Arrange for a Barre chum to bring me a new one. It arrives but phone Still won’t charge. Arrange for Dad to pick up phone to take it to his phone repair man in Borehamwood.

Look at my cute new drain bottle in the shape of a handbag:

Look who Mum photographed last night:

Wake up this morning after a dream in which was wetting the bed to find out that I had indeed wet the bed. Trying to take left sock off, dislodge cannula and there’s blood Everywhere. Press the nurse call button and am told off. Also told off yesterday for pressing the gripper of port back in after it’s come off. Twice. Also spill orange juice all over the floor.

Lung surgeon visits this morning. He is pleased with today’s chest X-Ray. He says the pleurodesis was a success and that I need to start going for walks to strengthen lung.

Nurse takes me for a walk around the hospital and it feels amazing to be able to breathe.

Two nurses come over from transplant to fix a new gripper in the port. They start to attach a dressing to which am allergic and I paw at it.

“Don’t tough the…”

“I’m allergic to that one,” I say. “Mum sent me some pink Micropore tape which is the only tape that doesn’t make me come up in a rash still and…”

“Lie down,” the nurse says. “Which bag is it in?”

“The black one with purple handles,” I say.

Eventually the correct tape is found and I am bandaged up.

Have a small sleep. Then Dr Stein calls and tells me not to change any meds yet as it’s possible that this is a reaction to the morphine and codeine.

The physio visits. She tells me to use my right shoulder and to keep moving. We go for another long walk.

Happy Tuesday everyone!

*2015. By Paula Dayly. Thriller novel starring Roz, a physiotherapist.

Home Again*

Achievements Of The Day

  1. Sleep from 9.30pm to 5.20am.
  2. Speak to brother in Abroad – it is good to talk to him.
  3. Fluffball won’t talk to me on the phone 📲 because he doesn’t know how to.
  4. At 9.30am go in for operation.
  5. It takes some time to come round in the ICU after operation.
  6. Then am wheeled back to room.
  7. Call parents to let them know that am alive.
  8. Go back to sleep.
  9. Wake up about six pm.
  10. Feel better.
  11. Eat my supper.
  12. Dr Anakin visits to say the operation was a success: the lung was already reinflated.
  13. He is pleased with me.
  14. He tells me that I will stay here till Sunday.
  15. I call parents and tell them this.
  16. Tomorrow parents are going to bring some more underwear and books.
  17. One of my Barre friends is bringing a phone changer – yay.
  18. Not allowed to see my visitors. 😭.
  19. Watching Home Again which is OK.
  20. Miss my Fluffball 😢. You can see him in the above photo.
  21. The panther lies next to me in my bed, resting his head on my tummy. I stroke the top of his head.

Happy Sunday everyone!

*2017. Feature film. Stars Reese Witherspoon, Michael Sheen, Candice Bergen and Pice Alexander.

The Two Faces Of January*

Start watching a programme about the Queen last night but turn it off at 9.30pm. Meditate and sleep. Wake up at 2.30am in pain and am allowed some codeine. Wake up again at about 5.15am.

Have coffee and then return to sleep till breakfast time. After breakfast, a nurse helps me pack up my stuff as am moving rooms: away from the COVID isolation ward. My tests must’ve come back negative.

New View is better:

Have traditional Sunday morning Zoom chat with my besties.

Finish reading Legacy by Susan Kay. It’s So Good.

My new room isn’t as comfortable as my old one but the television is better: have ITV3 and Film 4. Start watching The Two Faces of January. Have to stop watching it and go to sleep.

Now am watching a programme about the 2012 Olympics. We’re about to see Charlotte Dujardin and Valegro. They win with a score of over 90!

Have lunch, meditate and sleep. At 6pm am going to watch Midsomer Murders yay.

Am writing this sitting up in bed. The panther lies draped across my legs.

Happy Sunday everyone!

*1964. By Patricia Highsmith. Psychological thriller novel.

The Adventure Of The Copper Beeches*

This is my view from my hospital bedroom.

Last night I watch Vera on ITV from eight o’clock to ten o’clock. It is OK. Would watch it again in the future.

Meditate and sleep but wake up in pain and have some oramorph at three o’clock. Fall back asleep till 5.20am at which point wake up and have some coffee.

Have a bit more sleep. Read my book which I’m loving.

Lunch is almost an hour late so am very pleased when it arrives. Lung surgeon visits me. He says we will keep the drain in till Monday and I must do bits of walking. X-ray looks good apparently and lung is expanding, so everything heading in the right direction.

Am still wearing my oxygen: it is so good to be able to breathe. The nurse is just checking how much fluid is in the new drain bottle.

Am watching a programme about the Olympic Games in 2012 in London. We are up to Super Saturday: Jessica Ennis, Greg Rutherford and Mo Farah. Happy times.

The panther lies on the windowsill, looking out at the trees.

Happy Saturday everyone!

*1892. By Sir Arthur Conan Doyle. Sherlock Holmes detective story, first published in Strand magazine.

Night Drain

Yesterday only BBC1 is working on my television so I watch a programme about ambulances 🚑 and then fall asleep. Wake up at 5am in pain at my drain site. Manage to sleep on back though which is what am meant to do to stop the fluid going back up the drain.

Nurse gives me some oramorph. I fall back asleep till breakfast at 8am.

Dr says yesterday that I need to walk today to help lung reinflate. This ward may have COVID patients ok it so just walk around my room with a portable oxygen tank: still need the oxygen to breathe.

Porter takes me down for an X-Ray.

Nurse helps me have a wash: we wipe me with wet paper towels as am not allowed to wet drain site.

Lung surgeon visits. He says that the X-Ray looks good and I must keep doing bits of walking and then I can have the pleurodesis operation on Monday.

Meditate and sleep after lunch. Wake up and read some of Legacy: have read over four hundred pages already.

Am sitting up in bed writing this. The panther lies next to me, resting his heavy head on my shoulder.

My wolf cub is in hospital 🏥 with me:

Happy Friday everyone!

Last Drain To Clarksville

Go to sleep about 9.30pm last night and wake up at 5.30am this morning in pain. At least manage to sleep with drain and hooked up to oxygen. The oxygen makes such a difference: it feels so good to be able to breathe again.

Lung surgeon comes to see me and says that I will need to be here all weekend whilst they monitor how much fluid I’m producing. Three litres has already drained.

Here is the third or fourth drain bottle:

The fluid is red as it is near the bottom and has blood in it: the first liquid to drain was yellow.

Lung surgeon finds me sleeping on my front with my drain bottle on the left hand side of the bed. He tells me this is dangerous as some fluid could travel back up into lung. So I have to sleep on back with bottle on right hand side of bed on the floor. The panther lies on the floor, patting the drain tube with his huge paw.

Just manage afternoon sleep for a bit on back so that’s encouraging.

Am enjoying reading my book, which is lucky as television seems to be broken.

Have to be out of bed this morning whilst nurses were changing it. Become short of breath and cough and have chest pains. Codeine has been added to my drugs and it helps.

Have been struggling to do a wee. Finally manage one and do some in a cardboard tray so nurse can test that I don’t have a Urinary Tract Infection. Fingers crossed that I don’t.

Psychiatrist calls whilst I’m asleep and am waiting for him to call back. Tomorrow I will be going for a walk in attempt to make lung work again.

Happy Thursday everyone!

Legacy*

Am writing this from my hospital bed in Harefield. It’s such a relief to be here. Lung doctor looks at my scan this morning and demands that I come straight into hospital 🏥 as right lung is full of fluid.

Parents bring me but am not allowed any visitors.

They find a couple of nurses in the Transplant department who can work my port so they take bloods. Then lung surgeon puts in a drain. One and a half litres of fluid comes out before he switches it off.

Am rereading an old favourite about Elizabeth I:

It’s So Good.

My friend sends a dinosaur 🦕 but he arrives after I’ve set off for hospital sadly:

At five o’clock my nurse turns the drain on again for a bit. Lung surgeon is hoping that all the fluid will drain so he can perform pleurodesis on Monday.

Have had some oxygen and feel much more comfortable and relieved to be here. The panther lies curled up at the foot of my bed, sleeping.

Happy Wednesday everyone!

*1985. By Susan Kay. Historical novel.

A Night’s Tail*

Do Booty Band lying down as can’t breathe except when am lying down. Go for drive with Mum through Shenley to Sopwell.

Meditate and sleep. Then shell the peas and broad beans in front of Wimbledon’s Greatest Ladies’ Finals. We see Serena vs Sharapova and 19 year old Steffi vs Martina.

Fluffball is in now:

Am sitting on the grey sofa writing this and the panther lies next to me with his heavy head in my lap.

Have to see oncologist at 8pm. Hope he can help. Dad won’t be able to come in with me so I have a list of questions to ask written down.

Happy Monday everyone!

*2014. By Sofie Kelly. Cozy mystery novel.

Drop Shot*

My breathing is bad so I don’t manage Barre. It’s amazing how fast my health has deteriorated.

My lovely cousin visits and we sit in the garden. It is so good to see her. She brings me some beautiful sunflowers 🌻.

We watch last year’s Wimbledon Ladies’ Final between Serena Williams and Simona Halep. It’s good to see it again.

Have a message from Gandalf’s owner that I’m allowed to walk him again on Friday. Let’s hope that breathing has improved by then. Can’t wait to see my precious boy: I’ve missed him so much.

My precious angel Fluffball is in now. You can see him in the above photos.

Am sitting next to Mum on the grey sofa and the panther drapes himself between us.

Happy Saturday everyone!

*1996. By Harlan Coben. The second Myron Bolitar mystery novel.

Morning Glory Murders*

Here is the first Morning Glory flower.

Go for walk with Mum but have to keep stopping due to not being able to catch my breath. This is even on flat ground now. Breathing has become worse: sometimes struggle to catch breath even when sitting down.

We have an oximeter at home and when I measure my oxygen saturation it is 88 which is not good. Make an appointment to see oncologist next Monday evening. Although fluid is not meant to come back in lungs, maybe it has. Something is not right anyway.

Watch Wimbledon Rewind with Mum for Ladies’ Semifinals Day – it was on last night. We see Virginia Wade beating Chris Evert the year she won – 1977 – and Sue talks to Virginia and Chrissie over Zoom.

Meditate and sleep. Wake up and need coffee ☕️ and melon 🍈. The panther lies next to me as I write this, resting his heavy head on my shoulder.

Happy Friday everyone!

*2010. By Phyllis Fisher. Murder mystery novel.